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Organ & Tissue Donation Waitinglist

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    • CommentAuthorbill
    • CommentTimeFeb 8th 2010
     
    NEWTON —

    How do you ask someone to donate their loved one’s organs?

    Newton Medical Center has been at the forefront of shaping the policy on how organ donation requests are made, and as a result, lives are being saved and sight is being restored.

    When Janine Arnold started working with organ donation in 2005 at NMC, she thought there must be a better way to help families as they made donation decisions.

    At that time in Kansas, families were sent home from the hospital. Then a professional transplant procurement team called the family to request the donation.

    Arnold said professionals were better at asking and answering technical questions about transplants.

    But how do you get people over the first shock of the request? How do you get people to even take the call?

    The transplant experts are trained on how to ask questions, but there seemed to be a mental hurdle to get people to talk on the phone to a stranger when they are at home, Arnold said.

    Arnold heard from a transplant network representative that in other states, the families were approached at the hospital by a familiar but trained nurse or chaplain and then put on the phone with the transplant professional.

    Arnold said talking with families at the hospital is a better fit for the caring nature of NMC.

    “We are a community-centered hospital,” Arnold said. “When a person is in an emotional and grieving state, they are not thinking about the clinical anymore when they leave the hospital. We had to tailor something to fit our community.”

    • CommentAuthorbill
    • CommentTimeFeb 8th 2010
     

    Arnold said she and the hospital’s on-call chaplains are trained to arrange for families to talk to the transplant network in a quiet place about donation. She said the goal of their work is to not influence families but provide everyone the option to donate.

    “We didn’t have to take off our hats as caregivers,” Arnold said.

    However, the importance of donation is so great, she said she doesn’t what anyone to miss the opportunity.

    “I would hate for a family to leave our hospital and say, ‘They never said anything to us about donation,’” Arnold said.

    NMC implemented these new procedures, and transplant numbers soared.

    In October, NMC was honored with a gold award from the Midwest Transplant Network for a greater than 50-percent tissue-conversion rate during the previous year.

    That means half of all families with loved ones eligible to donate, donated tissue, bone, connective tissue, heart valves, organs, corneas, veins or skin.

    Today, most Kansas hospitals use the transplant networks telephone service, following NMC’s model of providing the family a quiet place within the hospital to have the conversation. Chaplains are used as facilitators.

    After the policy change, 14 hospitals under the Midwest Transplant Network received Medal of Honor awards from the Department of Health and Human Services for having donation consent rates higher than 75 percent.

    Arnold said she never really cared about the statistics and never knew the hospital’s policy was spreading until recently.

    “I’m just doing what I think is right,” she said.

     

    Donating eyes

     

     

    • CommentAuthorbill
    • CommentTimeFeb 8th 2010
     

    Cornea transplants are the most common type of transplant. Corneas are not affected by as many diseases as other organs. Cancer patients, people with diabetes and those who have poor eyesight can donate corneas.

    More than 50,000 cornea transplants are done in the United States annually, and corneas that can’t be transplanted can be used in research.

    Heartland Lions Eye Bank handles cornea donation for NMC under the umbrella of the Midwest Transplant Network. NMC’s cornea donation consent rate is 70 percent — the highest of all the Lions Eye Bank hospital partners.

    Cornea donation has contributed significantly to NMC overall donation rates.

    Cornea donation is quick, simple and will not prevent an open casket or delay a funeral.

    A cornea procurement specialist from Newton is called to the hospital, uses a tool to make a small incision in the eye and removes the thin clear cornea, which looks similar to a contact lens.

    “That alone — that transplant gives them the gift of sight. That’s all — that thin little cornea,” Arnold said.

    Sylvia Reinhardt, eye bank hospital services coordinator, related the story of a woman in western Kansas who was legally blind until she received a cornea transplant. Her vision now is 20/30, she’s returned to driving and plays with her grandchildren.

    After the procurement, a small disc is placed under the lid of the eyelid to keep the eyes closed, a procedure most funeral homes do regardless if there is an eye donation.

    Donations go to local recipients first.

    “Heartland Lions Eye Bank believes in community first. All corneal tissue we retrieve is offered first to surgeons in our three-state service region (Kansas, Missouri and Illinois) before being distributed nationwide. Eighty-one percent of our retrieved tissue is placed domestically — the highest rate of domestic placement of any procurement agency,” Reinhardt said.

    From July 1, 2008, to Feb. 28, the eye bank distributed 190 corneas to Kansas recipients, according to Eye Bank Association of America statistics.

    Reinhardt said the gold award was a great testament to the dedication of the staff at NMC.

     

    Donating organs

     

    Some family members are concerned about funeral arrangements when discussing donation, but even when organs, tissue and bone are removed for transplant, families can have open-casket funerals, and funerals are not delayed.

    A transplant team comes to the hospital and procures the organs, tissue or skin before the body is released to the funeral home.

    Where tissue or bone is removed, supportive material is put in place to make the body appear as it did when the person was alive.

    Bone can be used in facial reconstruction, limb salvage, correction of birth defects and cancer treatments.

    A pancreas transplant can enhance or save the life of a diabetic and eliminate the need for insulin.

    Skin can be used for burn patients. Veins can be used to restore blood flow to various part of the body. Major organs, such as heart, lung, kidneys or liver, all can be lifesaving.

    But the demand far outstrips the supply for these needed donations.

    As of 2006, there were 99,462 registered kidney, liver, pancreas, intestine, heart and lung potential donors.

    There were 92,492 patients waiting for those transplants.

    In 2005, 28,110 transplants were performed.

    During that same year, 6,342 patients were taken off the transplants list because they died.

    There is no cost to the donor’s family for any type of donation.

    All these may just seem like a bunch of numbers, but they aren’t to Claudine Corkins and her family.

    Corkins’ son died suddenly of a brain aneurysm in 2005. His family donated everything except his corneas.

    She said she has taken solace in knowing there is a young mother who has his kidney and a child has his other kidney and yet someone else who has his heart.

    “Our hearts are warmed so much to know so much good has been done,” she said of her son’s donation. “I really believe it is a good thing, and it eases our pain and suffering when you have lost someone.”

     

     

    • CommentAuthorbill
    • CommentTimeFeb 8th 2010
     

    How to donate

     

    You can become a donor by signing the back of your driver’s license with two witnesses present. You also can get a heart placed on your driver’s license to indicate your donor status.

    The state also keeps donor registry, which you can get your name on by contacting Midwest Transplant Network at (800) DONOR-91 or www.mwtn.org. The transplant network provides a six-line form, which requires a signature.

    But this may not be enough.

    Kansas is one of 10 states that does not have primary consent.

    This means that even if you have expressed a desire to donate, your next of kin can override this decision.

    The Kansas Legislature began a process to move toward primary consent in 2007, which means an indication by the donor is a consent that cannot be overridden. However, Reinhardt said the completion of that transition is still at least a year and a half away.

    In the meantime, Reinhardt said it is important for potential donors to talk to their families about their wishes.

    Reinhardt said after she had to make some difficult medical decisions about her parents, she decided to become a donor.

    She sat down with her husband and laid out in clear terms what her wishes were.

    “We all have a life expectancy. No one knows what it is. If something is going to happen to me, why not be a donor?” she said.

    Reinhardt said talking helps family in making any medical decision.

    “Let people talk about it. Whether it is your mother or sister, you should discuss how they are going to honor you at the end of life,” she said.

 

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